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Dargo's little girl needs our prayers

Brent,
Accreditation is a VERY important part of any health care facility in a similar way it is to a university. It affects funding, referrals and is a reflection of the abilities of the staff and quality of care. I have no doubt that the people in Boston are banging heads together and taking Methodist to task. My thoughts and prayers are still with you.
 
working woman said:
Hey all, just wanted to give you an update to let you know that the gift card we got for Brent and Mel was delivered today in person. I must say for the first time since I've known Brent he was speechless! and very touched.

Lets hope she gets hooked up with the right doctor who can get her on the road to recovery!
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AMEN!
 
Judy Judy Judy you are indeed AWESOME!!!!!!
Thanks so much for your help in getting the card to Brent. I'm not sure how we would have done it without you.
To all who donated to the cause, THANKS so much. We all feel for Brent and Mel and want to help in whatever little way we can, and together we came up with a card Brent can use for gas in the amount of $465. :eek: :clap: :clap: :clap: That should get him to Boston and maybe even help with part of the trip back. I feel good that we are able to help like this when one of our Forums Forums family is having a tough time and can use a little hand. Thank you all for being who you are. You are all folks that I am proud to call friends.
 
Wow! You guys are incredible!!!

As Judy said, I was speechless. Melanie has not been awake to give her the gift yet. When I got home I also got some of the first good news from this 'getting the records' ordeal. Apparently Methodist did not want Children's Hospital of Boston and Boston General asking for formal papers from Methodist.

I received a very cordial phone call from a very, very apologetic lady about an hour ago and she immediately faxed me well over 100 pages of medical records, which I immediately scanned and sent to the Boston based physicians. So, after weeks of waiting, all it took was an official inquiry from the brass at Boston's hospitals to Methodist to get the records on their way! Rback33 must be right about accreditation being rather important. :smile:

Now the nail biting starts. I'm told that it will likely take most of this week for the appropriate physicians in Boston to review the notes, and perhaps call for additional records, before I hear what the consensus course of action will be. I can't hardly stand it thinking that she may have to have another open brain surgery. It nearly killed me watching her endure the last one. I'm told they have a 9 tesla MRI machine out there. Maybe they can use that monster of a machine and see what they need to see without taking her head apart again! Still, being the trooper she is, Melanie says she's ready for 'whatever' it takes to get her better. Man, she's tough!!

I can't wait until she wakes up and I show her what you guys and gals have done for her. Between knowing so many people care, are so generous with their time, money and prayers, and her records are finally coming in, I hope it brightens her mood. Obviously, her mood has been down; which has brought my mood really down. I'm ready for some good news. I've slowly worked on our coach to make it "all weather" ready. I only have about another hour or so of work to finish for it to be ready to run in temps down to -10 or so.

Boston doctors want to try to see if the procedures can be done in St. Louis (much closer to us) if possible with them "quarterbacking" the case. I'm okay with that or I'm okay with living in our coach for a month or however long it takes in a parking lot in Boston. All I know is that it seems the log jam is finally starting to clear.

Thank you again to everyone who has even thought well wishes for Melanie. With any luck she can get past this phase in her life and she will be a pediatric surgeon in another 10 years or so as planned.
 
What a relief Brent.
I am glad that the records and all necessary info are finally making a move.
I am glad this is all going to be resolved soon.
I am THRILLED to think that Melanie will soon be out of pain and back on her feet again.
Don't worry so much about what may or may not happen once she gets to Boston.

You've had an awful lot of people praying for you all.
It's all going to be ok.
 
Hang in there Brent! The docs will give her records a good review and advise the best course of action. Take care of her and the rest of your family and other things will work out. Glad to hear you have the coach ready to roll if needed. That is one less worry to deal with. Remember to watch out for your knee through all this. that drive will be tough with a gimped up leg. Good luck and prayers for all.
 
That is good news Brent. Everything is starting to flow. The damn has busted. Prayers for Mel and the doctors in Boston that they make the right moves.
 
Thanks all. Right now we are in the "sit and wait" mode while the best neurologists available are all reading over Melanie's complete history, medical notes, scans, blood test results, spinal fluid test results etc. etc. To be perfectly honest, we were really sort of hoping to have heard something yesterday but obviously didn't.

It's really hard for me to keep patiently waiting. Well...let's just say waiting. My patience is almost all gone due to some less than honest physicians and hospitals. However, I would be completely remiss if I didn't note that there have also been some amazingly wonderful, caring physicians who have seen Melanie. It's a difficult situation and I cannot throw out any blanket statement about how horrible everything has been since there have been a few who were anything but horrible. Still, overall, I will most certainly go on record saying that I am much less than even a little impressed with Methodist Hospital of Indianapolis.

I'm now trying to figure out what to do with some of the blatant bullshit bills that have been just thrown into the pile from physicians wanting to grab a hand full of money from us as we pass by their area. We've received even more bills from this Dr. Roos, who spent much less than 1/2 an hour (closer to 10 minutes) with Melanie and had an intern write up a totally bogus and incorrect, dangerously so, "Final Report" on Melanie. If my numbers are correct, so far this Dr. Roos is topping $7000.00 for a 10 minute visit and having an intern write up a "Final Report" that very well could be for the wrong patient; it's that far off.

Am I wrong in thinking that, once I get Melanie in for proper care, that it's my civic duty to go after corrupt physicians like this Dr. Roos? The arrogance, incompetence and over-billing could honestly prove fatal in some instance. Or, is it just my emotions making me think that such a person shouldn't be practicing medicine?
 
After seeing how my Dad was treated in the hospital prior to his diagnosis, after his diagnosis and before his death, I have little faith in a lot of doctors and hospitals. So no, you are not wrong in thinking the way you are.

My continued thoughts and prayers are with Melanie and you and your family.
 
Dargo said:
Am I wrong in thinking that, once I get Melanie in for proper care, that it's my civic duty to go after corrupt physicians like this Dr. Roos? The arrogance, incompetence and over-billing could honestly prove fatal in some instance. Or, is it just my emotions making me think that such a person shouldn't be practicing medicine?
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Wait. Don't even think about this stuff yet. After Mel is back on her feet and smiling then you can think about this. Right now your mind needs to be clear and focused on her.
 
I have to agree with focusing on Mel's care right now. Most states have a 2 or 3 year statute of limitations on malpractice. Plenty of time for that after she is fixed up. Good luck to all.:flowers:
 
Ya know what, Dargo? I would mail them the bills back requesting them be shoved up somebody's backside because if they expect you to pay them, you will forward them, along with a lengthy detailed report of the physicians' and hospital's (in)activities in treating your daughter to the State Medical Board. I sort of guess that those bills will disappear. :whistling:
These latest posts caught me at a very bad time because my wife's P.A. is going to get an earful if her sinus infections are flaring up AGAIN!
There will be some medical ass-kicking going on in the State of North Dakota, shortly, as well.
No, Dargo you are not wrong! These frauds need to be taken down to burger flippers at McDonald's
GO GET 'EM!
And let us watch, ok?
 
Trakternut said:
Ya know what, Dargo? I would mail them the bills back requesting them be shoved up somebody's backside because if they expect you to pay them, you will forward them, along with a lengthy detailed report of the physicians' and hospital's (in)activities in treating your daughter to the State Medical Board. I sort of guess that those bills will disappear. :whistling:
These latest posts caught me at a very bad time because my wife's P.A. is going to get an earful if her sinus infections are flaring up AGAIN!
There will be some medical ass-kicking going on in the State of North Dakota, shortly, as well.
No, Dargo you are not wrong! These frauds need to be taken down to burger flippers at McDonald's
GO GET 'EM!
And let us watch, ok?
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:agree:The timing may not be the best Dargo, but you are doing everything posable right now . I say go after them now While everything is still fresh in your minds . Sometimes waiting is not such a good idea & it may be good therapy for yourself as well IMHO . Continued thoughts and prayers :flowers:
 
I feel you should put your well-deserved anger on hold and concentrate on getting Mel the proper care and treatment. What you should be doing right now regarding the probable malpractice/malfeasance is documenting absolutely everything so that nothing falls through the cracks later.

But, spend most of your energy doing whatever you can for Mel; she is the most important thing in all this and she needs you now like she never has before. Just be there for her, and remember my motto:

"Non-carborundum Illegitimai!!" ("Don't let the Bastards Wear You Down!!")
 
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I feel very worried for Mel and the treatment/care that is at hand....i do hope my concerns are just me a Father over reacting.

My prayers and good wishes are ongoing for you Brent....i do pray solutions are found real soon....Mel deserves the best treatment and care possible....and i know you Brent are doing your damn hardest and the system makes my blood boil.

Love and best wishes.
 
Although it's not a lot of progress, mostly mental attitude, I thought I'd post an update. With Melanie's drive to succeed and win in everything and her type A personality (almost an alpha male :eek:), she now has moved past the pissed off stage with the physicians and is doing her own to heal.

After basically laying in bed or on the couch since August, and having major brain surgery in between, she hasn't gotten any exercise. She's always been a competitive soccer player and very active. She said "heck with it!", and started walking on my treadmill last weekend. It was hard watching someone who could run for 60 minutes straight have a hard time even walking for 5 minutes, especially with the significant weight gain from the steroids and no exercise.

Last night she jogged 2 miles on my treadmill, spent 15 minutes on the elliptical machine and then walked 1 more mile and finished it off jogging another mile!! :wow:

I have a feeling for some reason that this is a turning point of some sort in her illness. Her physicians said she could walk a bit and even try to jog but jogging would be painful to her head and she MUST take every precaution to not fall and hit her head. They said she'd know how far she could push herself. Apparently she's determined to push herself rather hard!

We are still waiting for the neurologist team in Boston to tell us what they feel the next move will be. They said that a treadmill takes some of the 'shock' out of jogging because it flexes but they were still shocked at how quickly she is making progress. Oh yeah, the two mile jog was at full incline on the treadmill; I forgot to mention that.

Mental attitude from a 2 to an 8 right now.
 
Thats great news, thanks for the update Dargo & Kudo's to your extremely strong little girl . Continued thoughts & Prayers for Your family . :flowers:
 
Just goes to show how hard it is to suppress the human spirit..i'm so happy to hear her up and moving around:biggrin:thanks for the update my thoughts and prayers continue.
 
That's positive news Brent....and knowing this is going to be a battle that wont be won over night i praise Mel for finding the strength to try her damn hardest to get mentally and physically in the best shape possible for the road ahead....it will pay off greatly.

Go Mel Go you are truly inspiring:thumb::tiphat:......Prayers and best wishes on going.
 
Galvatron said:
. . .Go Mel Go you are truly inspiring:thumb::tiphat:......Prayers and best wishes. . .
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Says it all right there. She really is an inspiring young lady who is pushing against an illness that none of us can even imagine dealing with.
 
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