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  #61  
Old 02-06-2018, 08:49 PM
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Default Re: Frustrated

Yuck. That looks so painful. Man. That's horrible.
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  #62  
Old 02-06-2018, 09:11 PM
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Default Re: Frustrated

It is. I knew nothing about it before. So imagine having that, the feeling of a sledge hammer hitting your spine after walking 200 ft, and your abs burning. That's pretty much my daily struggle. I most likely will never work again. It sucks
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  #63  
Old 05-29-2018, 01:11 AM
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My saga continues. Now it's a combination of things.

1. My medications are all messed up. My doctor wanted me to try a new medication a few months ago. It didn't work out too well for pain control and actually made my crps worse. So he wanted me to stop it. I tried twice. Each time I stopped after only a few days I had severe withdrawals. Dizzy. Lightheaded. Nausea. Vomiting. Ringing in my ears. A sense of vertigo.

2. Being on the medication alleviates the above but causes the crps to flare up worse than before. I literally had to either sit or lay down in tears all weekend at camp. Saturday, I could barely walk 20 feet. It sucks. If you're squeamish don't scroll down. Within 10 seconds my foot looked like this. And lasted for hours.
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  #64  
Old 05-29-2018, 10:05 AM
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Default Re: Frustrated

Oh my!
Something needs to be done about that.
Doesn't look right at all.
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  #65  
Old 05-29-2018, 10:45 AM
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Default Re: Frustrated

I agree. It's sadly a part of having crps. Picture the most severe cramp or Charlie horse you've experienced and times that by 10.
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Old 05-29-2018, 01:15 PM
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Default Re: Frustrated

OMG, that looks horrible. Geez louise. I feel for ya man. Ouch x 10.
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  #67  
Old 05-30-2018, 11:27 PM
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Default Re: Frustrated

Bad news is I had a nasty flare up again tonight. Good news is that my pain program I've been involved in has really helped with the mental aspect of pain and the different ways of blocking out the pain.
And that has helped me turn a 4 hour flare up into an hour one. It still hurt like an SOB but I can mediate and take my mental focus off that and focus solely on my breathing.
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  #68  
Old 06-08-2018, 08:21 AM
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Default Re: Frustrated

I'm still getting these painful spasms and flares. Feels like its on fire and freezing at the same time. Only thing is now, they happen any time of the day and without warning. Before, I was only getting them in the evening. It makes things very difficult as I never know when it will flare and have to be prepared to drop everything and be out of commission for an hour minimum.

That picture is from last night. That lasted an hour before I could straighten it then it burned for another 2 hours.
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