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  #21  
Old 10-25-2013, 12:30 PM
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NOTE TO SELF: do not drool into your c-pap mask and then roll over onto your other side
been there done that.
The other thing I did was washed mask in vinegar and didn't rinse it thoroughly enough it felt like I was eating dill pickles all night.
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Old 10-29-2013, 09:35 AM
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Question Re: Doctor says I need a c-pap machine

Having a reoccurring issue . . . what do I do?

The more I get used to the Cpap, the more frequently I seem to have an issue that really bothers me. It is now waking me up almost 1 time each night.

The problem is that I wake up gasping for air and the mask is not supplying enough air to me. Or at least that is what it feels like. I'm pretty sure that I am getting enough air, but it feels like I'm being suffocated. Consequently I strip the mask off and wake up in a panic. I strip the mask off and calm down.

Then I tend to fall back to sleep with the mask off and sleep for a few more hours.

My Cpap is a Philips Respironics System One Remstar AUTO A-Flex. It is an automatically adjusting unit, I cannot increase the airflow manually. It is (apparently) designed to "learn" my breathing patterns and adjust the air-flow to my mask as desired. I called Apria Healthcare, the firm that supplied me with my Cpap and gave me the initial training, they said the doctor would have to reprogram it. The doctor doesn't want to do anything until he sees me in 4 weeks because he wants me to get used to the machine.

So my question is: Is my 'gasping for air' problem part of a dream?

Or is it really happening and I am really gasping for air?
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  #23  
Old 10-29-2013, 03:46 PM
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Default Re: Doctor says I need a c-pap machine

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Having a reoccurring issue . . . what do I do?

The more I get used to the Cpap, the more frequently I seem to have an issue that really bothers me. It is now waking me up almost 1 time each night.

The problem is that I wake up gasping for air and the mask is not supplying enough air to me. Or at least that is what it feels like. I'm pretty sure that I am getting enough air, but it feels like I'm being suffocated. Consequently I strip the mask off and wake up in a panic. I strip the mask off and calm down.

Then I tend to fall back to sleep with the mask off and sleep for a few more hours.

My Cpap is a Philips Respironics System One Remstar AUTO A-Flex. It is an automatically adjusting unit, I cannot increase the airflow manually. It is (apparently) designed to "learn" my breathing patterns and adjust the air-flow to my mask as desired. I called Apria Healthcare, the firm that supplied me with my Cpap and gave me the initial training, they said the doctor would have to reprogram it. The doctor doesn't want to do anything until he sees me in 4 weeks because he wants me to get used to the machine.

So my question is: Is my 'gasping for air' problem part of a dream?

Or is it really happening and I am really gasping for air?
UPDATE:

Just out of dumb luck I happened to get a call from my sleep doctor's office today about an appointment, so while I had them on the phone I asked about this "gasping for air" problem.

They scheduled me in for an appointment tomorrow morning and asked me to bring my Cpap machine in with me so they can read the card and possibly reprogram the machine to suit my needs better.
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  #24  
Old 10-30-2013, 09:40 PM
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Default Re: Doctor says I need a c-pap machine

Have you checked your filter? I mean the one what filters the incoming air. If it's partially plugged, you'll have problems. Been there, done that.
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Old 10-31-2013, 08:59 AM
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Default Re: Doctor says I need a c-pap machine

I didn't think about the filter because its a brand new machine and the gasping problem is not a constant problem.

I ended up taking it to the doctor's office, they downloaded the card from the machine and they even showed me where I was only getting about 4 hours of sleep per night during the last several days where I've been complaining about waking up gasping for air.

They reprogrammed the machine and I slept like a baby last night!
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  #26  
Old 11-04-2013, 04:24 PM
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Default Re: Doctor says I need a c-pap machine

Several days later and I'm still sleeping very well with the reprogrammed machine.

I'm having lots of dreams, something I was not doing for the past couple of years. I suppose that means that I am getting deep enough sleep now that I am going into REM sleep and getting real rest.
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  #27  
Old 11-12-2013, 10:43 AM
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Default Re: Doctor says I need a c-pap machine

Quote:
Originally Posted by Melensdad View Post
Several days later and I'm still sleeping very well with the reprogrammed machine.

I'm having lots of dreams, something I was not doing for the past couple of years. I suppose that means that I am getting deep enough sleep now that I am going into REM sleep and getting real rest.

My Dr said if I was getting dreams I was getting a very good quality of sleep!

I have been getting some odd and vivid dreams (what I can remember of them) since being off work the last mounth or so
I don't remember them being like this when I was working but I'll take the good night sleep I am getting.

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  #28  
Old 11-12-2013, 12:47 PM
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Default Re: Doctor says I need a c-pap machine

I think last night was the first night that I slept all the way through the night with the mask on. 10pm to 5am.

Normally I'm up at some point, usually to take one of the dogs out. I often get about 4 to 5 hours of sleep with the mask on, then I take it off for a little while, then put it back on and fall back to sleep again.
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  #29  
Old 12-03-2013, 09:49 AM
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Default Re: Doctor says I need a c-pap machine

Doctor's appointment in about 2 hours. I've been sleeping through the night most nights. But I've also been feeling the NEED for coffee about lunchtime. My coffee/caffeine intake has dramatically reduced, I drink several cups, per day, but nothing like the quantity of coffee I used to drink to help me stay awake.

Prior to the CPAP my coffee intake would be a steady flow from morning through lunchtime. And I am serious about steady flow. Quite literally a cup of coffee would be with me at virtually all times throughout the morning and into early afternoon. Then I would go to Fencing practice at school, after stopping off at Starbucks. Add some acid ingestion on top of my constant yawning and that was my day.

With the CPAP I probably have reduced my coffee intake by 60-70% and generally drink it because I want it. Although by mid-afternoon I do enjoy the caffeine boost. I am NOT yawning all day. In fact I rarely yawn anymore.

I'm curious to see what the doctor says at this morning's visit after reviewing the SD Card from my machine.
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  #30  
Old 12-03-2013, 10:48 AM
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Default Re: Doctor says I need a c-pap machine

Quote:
Originally Posted by tommu56 View Post

I have been getting some odd and vivid dreams (what I can remember of them) since being off work the last mounth or so
What's her name in the dream? Blonde brunette, or red head?
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  #31  
Old 12-03-2013, 01:13 PM
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Default Re: Doctor says I need a c-pap machine

Well for a newbie with a Cpap apparently I'm doing pretty well with it.

87% of the time I get over 6 hours of sleep with the unit on.

He says he wants to see me again in 6 months.
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  #32  
Old 05-04-2017, 01:26 PM
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Default Re: Doctor says I need a c-pap machine

How is it going with your CPAP Bob (and anyone else using one)? Do you still need to use it nightly?
I had a sleep study as my wife noticed my symptoms. I had no idea but I was always tired. Thought it was part of getting older, just life.

I've been using the CPAP since last Thursdy, so one week in. I have the nose one with 'pillows'. The least intrusive the nurse said. It does work well and I'm getting used to it. I can sleep through the night. Before I was up three and four times a night for peeing. Now I sleep through the night or get up once. The study showed I woke up 52 times per hour. Never entered REM sleep. With the CPAP I got REM sleep. I do feel better, but my nose is sore. I've been told that will go away once I'm used to wearing this thing.

My CPAP only needs a little distilled water added. Thankfully no oxygen tank like a coworker had to have.

For those using CPAP, do you travel with yours? Do you use it every night? It is not the nightmare I thought it would be ...actually it is awesome to get a real nights sleep for a change.
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Old 05-04-2017, 01:35 PM
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Default Re: Doctor says I need a c-pap machine

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How is it going with your CPAP Bob (and anyone else using one)? Do you still need to use it nightly?
I had a sleep study as my wife noticed my symptoms. I had no idea but I was always tired. Thought it was part of getting older, just life.

I've been using the CPAP since last Thursdy, so one week in. I have the nose one with 'pillows'. The least intrusive the nurse said. It does work well and I'm getting used to it. I can sleep through the night. Before I was up three and four times a night for peeing. Now I sleep through the night or get up once. The study showed I woke up 52 times per hour. Never entered REM sleep. With the CPAP I got REM sleep. I do feel better, but my nose is sore. I've been told that will go away once I'm used to wearing this thing.

My CPAP only needs a little distilled water added. Thankfully no oxygen tank like a coworker had to have.

For those using CPAP, do you travel with yours? Do you use it every night? It is not the nightmare I thought it would be ...actually it is awesome to get a real nights sleep for a change.
I travel all the time with one, I'd be miserable without it. If you get use to it you will NOT want to do a night without it!!!! I actually have 3 machines ..... my bed, nap room (I'm not ashamed I have a nap every now and then when I do work marathons in a upstairs bedroom beside my office) and my travel machine. I use a nasal mask. I haven't used a humidifier in years, only did it a few months and stopped using it. Only time I notice it is when we have long stints of dry weather and it's never too bad.
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  #34  
Old 05-04-2017, 02:00 PM
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Default Re: Doctor says I need a c-pap machine

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I travel all the time with one, I'd be miserable without it. If you get use to it you will NOT want to do a night without it!!!! I actually have 3 machines ..... my bed, nap room (I'm not ashamed I have a nap every now and then when I do work marathons in a upstairs bedroom beside my office) and my travel machine. I use a nasal mask. I haven't used a humidifier in years, only did it a few months and stopped using it. Only time I notice it is when we have long stints of dry weather and it's never too bad.
Thanks Dawg. My CPAP has a water reservoir that needs fresh distilled water nightly. I have to rinse it each morning so that it drys completely before using later that night.

Saying no humidifier does that mean your CPAP does not use distilled water?
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Old 05-04-2017, 02:06 PM
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Default Re: Doctor says I need a c-pap machine

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Thanks Dawg. My CPAP has a water reservoir that needs fresh distilled water nightly. I have to rinse it each morning so that it drys completely before using later that night.

Saying no humidifier does that mean your CPAP does not use distilled water?
I've never seen a CPAP machine that had a permanently mounted humidifier. I think if you look closer it can be removed. I can tell right now you're doing what they recommend but 99% of users don't clean every day and I never did. When I did use it, I just filled it back up (yeah, distilled water). I know that's the biggest reason I quit using it, too much hassle ...............
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  #36  
Old 05-04-2017, 04:00 PM
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Default Re: Doctor says I need a c-pap machine

Quote:
Originally Posted by Doc View Post
How is it going with your CPAP Bob (and anyone else using one)? Do you still need to use it nightly?
I had a sleep study as my wife noticed my symptoms. I had no idea but I was always tired. Thought it was part of getting older, just life.

I've been using the CPAP since last Thursdy, so one week in. I have the nose one with 'pillows'. The least intrusive the nurse said. It does work well and I'm getting used to it. I can sleep through the night. Before I was up three and four times a night for peeing. Now I sleep through the night or get up once. The study showed I woke up 52 times per hour. Never entered REM sleep. With the CPAP I got REM sleep. I do feel better, but my nose is sore. I've been told that will go away once I'm used to wearing this thing.

My CPAP only needs a little distilled water added. Thankfully no oxygen tank like a coworker had to have.

For those using CPAP, do you travel with yours? Do you use it every night? It is not the nightmare I thought it would be ...actually it is awesome to get a real nights sleep for a change.
I use it every night. 100% compliance. Average is over 6 hours per night. Home unit has a water tank, which is removable.

As for travel, I actually bought a compact unit (fits in palm of my hand, weighs under 1#), which is somewhat loud and bothers my wife (but not me). So yes, I travel with a CPAP too. Human Design Z1 CPAP.

https://hdmusa.com/product/z1-cpap/
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  #37  
Old 05-04-2017, 04:26 PM
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Default Re: Doctor says I need a c-pap machine

My brother died of sleep apnea. No one told him he needed a CPAP. He just stopped breathing. He was 49.
Use the thing!
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  #38  
Old 05-04-2017, 08:55 PM
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Default Re: Doctor says I need a c-pap machine

Last July...I woke up about 0200 and knew I needed to get some help...headed to the emergancy room.....they preped me and around 07oo the morning of the 5th I went to sergury.....the morning they took the breathing tube out the doc ask if I was on a cpap......didnt even know what he was talking about...10 minets later I found out what it was and how to use it.....Must admit when I first saw it...didnt think I was going to axcept it......must say that by the time I checked out of the hospital ...I sure made certin it was comming home with me!! I have found that I get along best with a smaller mask....started out with a large and have worked down to a small...as for power out times..the utility we are with brought me a batt..back up and if we have a power outage it switches over on its own....and then back again when power comes back on....thats about it Doc....would not want to be without it ...
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Old 05-04-2017, 08:59 PM
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Default Re: Doctor says I need a c-pap machine

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I've never seen a CPAP machine that had a permanently mounted humidifier. I think if you look closer it can be removed. I can tell right now you're doing what they recommend but 99% of users don't clean every day and I never did. When I did use it, I just filled it back up (yeah, distilled water). I know that's the biggest reason I quit using it, too much hassle ...............
My water reservoir is also removable. Sorry for the confusion.

My assumption is that the unit will not work without the water reservoir plugged into the machine...because the very first night I used it I did not have the water reservoir plugged all the way into the machine port and the machine error-ed.

If it will work, what is the diff between having the humidifier vs not using the humidifier?
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Old 05-04-2017, 09:39 PM
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Default Re: Doctor says I need a c-pap machine

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My water reservoir is also removable. Sorry for the confusion.

My assumption is that the unit will not work without the water reservoir plugged into the machine...because the very first night I used it I did not have the water reservoir plugged all the way into the machine port and the machine error-ed.

If it will work, what is the diff between having the humidifier vs not using the humidifier?
I have to say there is a way to remove the reservoir, may not look like it but I bet there is a way to separate the water reservoir and pump unit. Look for a power inlet on the pump. If there is it can be seperated and you ise the power supply on the pump. Dry nose when weather is dry ..............
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